Tuberous Sclerosis Multidisciplinary Clinic
Tuberous sclerosis complex (TSC) is a rare, inherited genetic neurocutaneous disorder that affects 1 in 6,000 to 1 in 10,000 live births, with an estimated prevalence of 1 in 20,000.
The clinical manifestations of tuberous sclerosis complex (TSC) are highly diverse in both organ system involvement and severity. Any organ system can be involved, with some more prevalent during infancy and childhood and others more likely to affect individuals as adults.
There is a wide variation in presentation among individuals belonging to different families or even within the same family. Central nervous system CNS, skin, heart and kidneys bear the brunt of clinical manifestations of TSC.
Appropriate management is crucial for optimal quality of life of affected individuals and requires coordination of care among medical specialties and from childhood to adulthood on a regular basis and especially during the critical transition from pediatric to adult health care service.
Tuberous sclerosis complex (TSC) MDT multiple disciplinary clinic serves as the primary center for surveillance; diagnosis; and management of tuberoses sclerosis for children. The clinic may range from single to multispecialty practice of health care provider in specialty related to care of TSC.
TSC Clinic Specialties that are providing care in TSC clinic
- Neurology
- Nephrology
- Oncology
- Cardiology
- Ophthalmology
- Genetics and Genomics
- Mental Health
- Radiology
- Occupational therapy
Why did we develop Tuberous Sclerosis Multidisciplinary Clinic?
We are treating the patient as a whole, beecause TSC affects multiple organs; our clinic has the expertise of pediatric specialists from a variety of disciplines within our medical center. These specialties work to provide the best approach to your child’s care and convenient as child can often be seen by multiple specialists on the same day.
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